Meet-ups

Our Events

Join our gatherings to connect with other families and professionals.

Annual Meeting 2025

Join us for our next meeting dedicated to MED13L syndrome. A unique opportunity to interact with experts and families.

October 17, 2025
Lyon, France
In-person and online

On the agenda

  • Conferences by genetics experts
  • Workshops for families and professionals
  • Discussions on new research
  • Meetings with other families

Pre-registration

Register now to be informed of event details.

Precise event details (location, program) will be communicated later to registrants.