The  MED13L SYNDROME association was founded in March 2018 at the initiative of three families from Paris and Nantes, France who decided together to make known this recently discovered syndrome, to gather families around the world and to support researchers working on this genetic anomaly and other similar anomalies (MED13 and MED12/MED12L).
S k y   i s   o u r   l i m i t


Non Profit Association under the French Law n° W442019482 officially published on 31 March 2018.

Recognized as Association of  General Interest by the French fiscal administration

The logo is the property of the association.  Any donation action organized by a third party for the benefit of the association
cannot be carried out without a formal partnership agreement signed beforehand

Publication director: Fr. Ropert Conquer - Web provider: Mozello  - Based in  Nantes - Tel:  +33 (0)6 62 63 21 61