Proud to inform you that the first meeting of # MED13L families will take place in Paris, this Sunday 30 September with Dr Jamal Ghoumid, genetician at Lille Hospital who will talk about ongoing research he is conducting on the syndrome with Dr Thomas Smol (Lille Hospital too). Twelve families will make the trip from all over France: Nantes, Bordeaux, Lyon, Angers, Lille, Bethune, Strasbourg, and of course Paris to gather around a buffet, and discuss future projects of our association.
A video will be available with subtitles in English later