Silke Groth is 12-year-old Sina's mom and lives in Berlin. She works in the disability field and accepted to be the MED13L SYNDROME correspondent in Germany. We will have the chance to have soon a version of the site in German, which will allow us to reach more families. Silke will identify all scientific researches in Germany, raise awareness among institutions and animate the group of German families.
Also in project, the creation of a forum allowing the families which are not on Facebook to be able to share easily on our website.